Strategies for assisting a loved one with Parkinson's:
Let's face it, you wanna do right by your loved one battling Parkinson's, but you might not be a seasoned caregiver. Here's a practical guide to help a spouse or partner cope with this tough diagnosis:
- Keeping it real with each otherIt's common for the caregiver-patient dynamic to get skewed, with one person becoming the 'nurse' while the other becomes the 'helpless patient.' Avoid this power shift by launching a conversation with your partner to define when, and how, they truly need help.
- Self-education is crucialInvestigate resources that help you understand Parkinson's and its likely progression. Start with educational materials provided by Parkinson's NSW InfoLine (phone 1800 644 189). One key takeaway - Parkinson's is complex, and what works for one person might not for the next.
- ** Community and medicine appointments**Attend medical appointments alongside your loved one. Ask questions, take notes, and discuss any issues you pick up on, such as sleeping problems or mood disorders. Keeping a running list of questions to take with you will help you stay prepared.
- There's no escaping insurancePatient care can be costly, so familiarize yourself with your private health insurance terms to know what's covered for prescriptions, therapy sessions, and other expenses.
- Stay on the lookoutBe vigilant about changes in symptoms, abilities, and emotions. Note down any shifts in abilities, especially after changes in medication or therapy, as these could indicate a new stage in their condition.
- Adaptability is keyParkinson's is a fickle disease, with symptoms fluctuating over time. Be ready to adjust your caregiving strategy when needed, and approach your loved one with understanding should they face tough days.
- Pill poppers uniteConsistency is essential when taking medications. Working together to create a medication management system will ensure prescriptions are taken on time, every time.
Remember, it's equally important to take care of yourself as you support your loved one during this challenging journey. Open communication, self-education, and strategic care are the keys to providing the best possible support for someone dealing with Parkinson's.
References:- Johns Hopkins Parkinson's Disease and Movement Disorders Center- Parkinson's NSW InfoLine- Various sources pertaining to Parkinson's care and self-care for caregivers, including but not limited to [1], [2], [3], [4], [5]
- Recognize that neurology plays a significant role in understanding Parkinson's disease, as it is a type of neurological disorder.
- Movement disorders, such as Parkinson's, require a comprehensive approach to manage, which often involves science and medical-conditions research.
- Workplace-wellness programs can offer valuable resources for caregivers of individuals with movement disorders, providing support and coping strategies.
- Chronic diseases, like chronic kidney disease, COPD, type-2 diabetes, and cancer, may co-occur with Parkinson's, requiring therapies and treatments that address multiple health issues.
- Respiratory conditions, such as COPD, can cause complications for Parkinson's patients, necessitating a focus on respiratory health.
- Digestive health is crucial for overall well-being, and may be impacted by Parkinson's or certain medications used to treat it.
- Eye-health can be affected by Parkinson's, so regular check-ups and preventive care are important.
- Hearing loss is a common issue for Parkinson's patients, making communication more challenging; identifying and addressing hearing issues is essential.
- Health-and-wellness encompasses all aspects of one's physical and mental health, making it a critical focus for caregivers of people with neurological disorders like Parkinson's.
- Fitness-and-exercise are key components of maintaining health for both the caregiver and the person with Parkinson's, helping to manage symptoms and promote overall well-being.
- Alzheimer's disease and autoimmune disorders can present similar symptoms to Parkinson's, necessitating awareness and possible screening for these conditions.
- Mental-health is crucial to a person's overall well-being, and can be impacted by Parkinson's or the stress of caregiving; seeking support for mental health concerns is essential.
- Skin-care is an essential aspect of daily care for people with Parkinson's, as they may experience skin conditions like psoriasis or rheumatoid arthritis.
- Lifestyle choices, such as nutrition and fitness, can play a significant role in managing chronic diseases like Parkinson's and other neurological disorders.
- Multiple-sclerosis and migraines are other neurological disorders that may bear similarities to Parkinson's and require careful management and support.